Prescription Charges

The UK Sickle Cell Society has joined the Prescription Charges Coalition, a group of patient support organisations campaigning for the abolition of all prescription charges. This affects every single person in the sickle cell community – lets all get behind this campaign, sign the petition and write to your MP at:

Most patients with sickle cell take folic acid and penicillin every day together with a variety of painkillers when they have a crisis, say a combination of paracetamol, ibuprofen and dihydrocodeine. That’s five separate prescription items, excluding additional medication for any other problems. These days GPs are encouraged to only give prescriptions for 28 days to discourage waste, so conceivably that will mean a repeat prescription for five items every month. At the current coast of £8.05 per item that amounts to £40.25 a month or £483 a year.

This makes a mockery of one of the founding principles of the NHS, that health care should be “free at the point of need” and England remains the only one of the UK nations where this iniquitous system still applies. Charging for essential medications in this way is a powerful disincentive to successful self management, forces people to make choices between health care and other priorities and ultimately costs the NHS more money, because long term conditions are poorly managed, requiring more outpatient and GP appointments and more frequent admissions to hospital. It certainly does not put the patient at the centre of the health care process.

Exemptions from prescription charges were set in 1968 but have changed little since then – they are outdated, arbitrary and inequitable. You can save money via Prescription Prepayment Certificates or by using the NHS Low Income Scheme, but these are poorly publicised and difficult to access and still may involve a significant upfront payment, which for many is unaffordable.

The Prescription Charges Coalition present some damning data in their 2014 report. The headline figure being that 37% of patients, with a long term condition, do not take their medication as prescribed because of the cost of prescriptions.


This clearly affects their health, with a big proportion having a significant amount of time off work as a result. Predictably, this affects the poorest chronically ill patients the most; 44% of those in the lowest income bracket had not taken their medication as prescribed, compared with only 17% in the highest income bracket.

This unfair tax, penalising the sickest and poorest in society must be abolished – do something today!


About rogerjamos

I am a consultant haematologist who has worked in Hackney, London, UK with patients who have sickle cell disease for many years. Knowledge is power; the hope is that this blog will empower patients by putting them in touch with contemporary research into sickle cell disease and facilitating informed discussion on the issues raised. Dr Roger Amos MA, MD, FRCPath
This entry was posted in sickle cell disease and tagged . Bookmark the permalink.

2 Responses to Prescription Charges

  1. ann corbett says:

    To know that these charges were set 46 yrs ago we must now not only fight our pain but fight to have a place in theNHS, awareness is good but we need our medication. We changes in the NHS.

  2. Ajoke A says:

    Thank you for this.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s